
Lately I have been trying to find ways to empower myself. I know, that sounds like a big pot of swiss, gouda and cheddar- SUPER CHEESY. But I honestly do feel that with an unpredictable disease like M.S, we should take every opportunity we can to feel like we have some sort of control over our lives.
I have found that the best way for me to feel like I have some sort of say in my disease is by developing a plan, and sticking to it every day. For me, that involves a healthy diet along with an exercise plan. Also, setting aside time for stress-busting meditation, and taking the medicines and supplements that I know will help me. Of these things, exercising daily is most certainly the hardest.
A little background on me: I grew up dancing and dance has always been my passion. I danced all though college and even through bouts of optic neuritis and neuropathy. I was also an avid runner, with four marathons under my belt and I worked as a personal trainer for years. Last year, the most debilitating fatigue I have ever experienced hit me. Getting though a 3 hour rehearsal or a 90 min dance class would lay me flat on my back for a good day following. I would also start visibly shaking and get very weak and dizzy after a dance class (literally crawling to the wall one time in a modern dance class. Humiliating) I realized that I had to adapt every workout for how I felt that day, week, month. This has been one of the hardest things for me to cope with. When I hear runners run by my kitchen window, the desire to get out there and feel the brisk morning air chasing me is almost too much. But I cant. At least not every day.
I've learned that if I set aside 30 min a day to exercise- I feel 20x better than when I make excuses not to. Some days I only have it in me to stretch and do very gentle yoga. Other times I have been able to run, cycle and even dance. All it takes is the MENTAL strength to say 'now I am exercising' and start. Of course, there are times when I have overdone it and spent the next day on the couch. But exercising actually helps me to understand my limits and know how to operate in a way that I move and stay as active as possible without making myself sick. And *yeay!* for endorphins! Nothing beats the great flood of 'happy' that comes after a nice workout.
Exercising is one of the ways I have found to empower myself. It reminds me that I have strength even if it's just the mental strength to TRY exercising. It reminds me that my body is this physical, powerful thing and that I am connected to it in a positive way.
Anyhow, I suppose I am on this subject because I feel so great right now- and the only thing that has changed is that I have gotten back on track with my diet and exercising. I am still dealing with the same symptoms I've had for a month (burning legs, numb face, bouts of trigeminal neuralgia) but I am feeling so empowered right now. I feel like I am FIGHTING M.S again, and not just sitting back and suffering. It's a great feeling.
Hi- this is a wonderful, inspiring and hopeful post. "thank you". Everyday I face myself by celebrating my freedoms and also honoring my limits. A sensitive balance that requires constant adjustment.
ReplyDeleteLove Gail
peace......
Thank you Gail. 'A sensitive balance that requires constant adjustment' is exactly right. Lovely words. xx
ReplyDeleteWhat an inspiring post! I love your attitude and that you can look at things positively - and don't worry about the cheese, I can smell it from here but it smells delicious.... :P
ReplyDeletep.s you are a good writer (enjoyable and informative) and i have bookmarked this blog. :)
Speaking of which I found your blog when searching for similar blogs to my aunties and thought you might be interested in taking a look. It is called Bette Bravo (named after their dog) and it has Information and lifestyle tips for Multiple Sclerosis and CCSVI treatment available.
Do you or anyone you know, know of this treatment or have had it before?
My Auntie, Jenny, lives in Norwich, England and suffers from Primary Progressive MS. She has had it for a good few years now but as a child i didnt really notice, it is only as i have got older that i realised she was suffering - she always seems to have a smile on her face, which humbled me with her braveness! You reminded me of her! She is currently waiting for the treatment CCSVI in Poland - apparently it is not available in the UK yet but if tests are positive they may roll it out here.
As she says, this could be the beginning of a cure for this disease.
We have every finger and toe crossed for improvement! She is having the operation in August and she is uploading a lot of videos to show her condition before and after the op. She is rather technically impaired hence why I am contacting you, but she would love to hear from you and your experiences and if you would like to know more about her CCSVI journey please please get in contact.
kind regards and good luck
Kate
Kind regards and best wishes
Hi Kate! I have heard of CCSVI and I even pursued this with my doctor, who told me I qualify for the treatment but my insurance wont cover it. Many doctors in my area still don't seem to want to learn about CCSVI which is very frustrating. I suppose I will wait and see. The few people I know who have had CCSVI have had great results.
ReplyDeleteI checked out your aunts blog and it was great! She is lucky to have your support and love. I'll be sure to follow it. Truly wishing her the best. Thanks for all your kind words and taking the time to write- It means a lot to me.
I agree with exercise! Just found that helps me feel better and some days I cannot do as much as I would like to. Stretching helps me too. I have not tried Yoga yet...Great post
ReplyDeleteKeep that attitude and you keep empowered. MS will never be the boss of YOU!
ReplyDeleteWow your situation mirrors mine, except in my best days there were no marathons involved. At my peak I ran four miles at out local park. It felt like heaven to me. I loved running and miss it passionately. I do PT now and it wears me out. It's been 11 years now and I'm still trying to find a health balance between exercise and exacerbation!
ReplyDeleteI'm going to start following you for inspiration as this is exactly what I'm setting out to do myself!
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